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March 2004
27 Move to Pittsburgh to await transplant
August 2004
25-26 Transplant of small intestine; excellent recovery initially
30 Out of ICU to regular transplant floor (7 North)
September 2004
5-15 Rejection, successfully treated with steroids and 10 doses of OKT3
16 First day able to eat!
23 Viewed old intestine; went home! (Battle and Carol Brown's house)
28 Endoscopy showed rejection; returned to 7 North for steroid treatment
October 2004
4 Rejection worse; EBV discovered; Thymoglobulin not effective so back to OKT3
23 On a pass from hospital, visited Pittsburgh Conservatory where contracted Legionnaire’s Disease (identified Nov. 5)
26 Rejection worse; adenovirus identified in intestine; back on full-calorie TPN
November 2004
2 Blood sugar 511; went out to vote then straight back to bed; started coughing during the night with increasing shortness of breath
4 Endoscopy and bronchoscopy in OR; intubated; ICU on ventilator; immunosuppression stopped
5 Almost died from bilateral pneumonia (Legionnaire's Disease); on oscillator
10 Surgery to remove transplanted intestine
December 2004
4 Extubated!
6 Sat in wheelchair! Making progress toward leaving ICU
12 Re-intubated with another pneumonia in right lung
14 Condition worsening; in both lungs; pneumonia identified as CMV
30-31 High fevers (up to 41.3o); beginning to wake up; progress on weaning from ventilator
January 2005
3 Vacuum dressing applied to sacral pressure sore; weaning from Fentanyl
4 Yeast infection identified; purple foot from arterial spasm
8 Extubated!
11 Sat in wheelchair ½ hour
16 Out of ICU, to 7 North (after 74 days in ICU, most of it unconscious)
31 Moved to rehab hospital (The Children's Institute)
February 2005
8 Returned to Children's Hospital of Pittsburgh with pancreatitis
21 Line infection
March 2005
9 Line infection conquered!
29 Home from the hospital!!! (Browns' house) after 7 months inpatient!
April 2005
29 ICU with sepsis
May 2005
4 Out of ICU
9 Home from hospital. On transplant list for small bowel, stomach, pancreas
10-15 Visit to ND for classmates’ graduation
18 Home to Brazil!!
June 2005
18 Back to Pittsburgh from Brazil
22 Hospitalized with line infection
July 2005
11 Home from hospital; yellow from jaundice
August 2005
11 Decision made to include liver in transplant (progressive, irreversible damage from TPN)
17-22 Hospitalized with line infection
September 2005
22 Hospitalized with line infection
October 2005
4 Home from hospital
November 2005
11-25 Hospitalized with line infection (part of time in ICU)
12 Moved right foot for first time in over a year!!
December 2005
14-17 Hospitalized for insertion of new central line
19-21 Hospitalized for pain management
January 2006
7 Hospitalized with line infection; docs think liver damage so severe she may have 3 months to live without transplant
10-11 Transplant!!! (small bowel, duodenum, stomach, pancreas, liver)
February 2006
All month in ICU
March 2006
2 Out of ICU to 7 North!!
April 2006
27 Transferred from hospital to Children’s Institute (rehab hospital)
May 2006
All month in rehab hospital
June 2006
16 HOME!!! (after 5+ months inpatient!)
29 To Iowa for family reunion
July 2006
6 Home (Pittsburgh) from Iowa
15-27 Hospitalized with line infection
20 Central line removed!!
August 2006
16 Moved from Pittsburgh to South Bend, IN to start fall semester at Notre Dame
September 2006
30 Bowel obstruction; life-flighted to Pittsburgh but resolved without surgery
October 2006
3 Back to ND
December 2006
19 Hospitalized in Pittsburgh with another bowel obstruction
January 2007
5 MRI performed which showed Avascular Necrosis (not seen by orthopedist until Feb. 5)
26 Fainting episodes diagnosed as Dumping Syndrome
February 2007
5 Informed of Avascular Necrosis (AVN) diagnosis
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Karis Kornfield 
